Okay... so I'd not exactly planned to have this blog reflect my personal journey, so much, but it appears that is where my creative powers have gone, and so I can only follow their lead. My mind is interesting, that way: it seems to want to express what it wants to express, and anything else won't get shared! So I guess you get to know me a little better!
I've been around a while, and learned a few things along the way. I believe one should leave this world a bit more, for the moment shared with it; perhaps it's time I try.
Showing posts with label Interstitial Cystitis. Show all posts
Showing posts with label Interstitial Cystitis. Show all posts
Monday, October 31, 2016
I'm Grateful That's All You Have!
Post Labels:
Abilities,
Celiac Disease,
Challenges,
Cliches,
Communication,
Coping,
EDS,
Ehlers-Danlos Syndrome,
Empathy,
Gastroparesis,
Gluten,
Gratitude,
Health,
Interstitial Cystitis,
Mindfulness,
Support
Monday, July 4, 2016
Calm in "The Diagnosis Vortex of Doom"
Last week, I shared a link to an article by Michelle Auerbach which resonated with a lot of people who are struggling with illnesses which either cannot be, or simply haven't yet been diagnosed, and an adequate treatment program begun. The fact that so many agreed it was an issue of importance, both in public and in private, has had me thinking about my own situation, and so, here we go again! Something a little unusual, but hopefully of value to someone, as well as doing right by Ms Auerbach and her article.
Post Labels:
Autoimmunity,
Celiac Disease,
Challenges,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Fibromyalgia,
Gastroparesis,
Health,
Hope,
Hypermobility Syndrome,
Interstitial Cystitis,
Pain,
Patience,
Rare Disease,
Support
Wednesday, February 18, 2015
Ignorance Isn't the Bliss You'd Like It to Be
I'm not usually one to directly share links to other entities, here on this blog, partly because I am very aware that there are a LOT of "awareness" days, weeks, months, etc.; but this one is different. This one is important to me, in a very personal and unique way.
Post Labels:
Autoimmunity,
Celiac Disease,
Challenges,
Change,
Communication,
EDS,
Ehlers-Danlos Syndrome,
Gastroparesis,
Health,
Hope,
Hypermobility Syndrome,
Interstitial Cystitis,
Pain,
Rare Disease,
Service,
Stigma,
Support
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