I've been around a while, and learned a few things along the way. I believe one should leave this world a bit more, for the moment shared with it; perhaps it's time I try.
Showing posts with label EDS. Show all posts
Showing posts with label EDS. Show all posts
Wednesday, January 6, 2021
A Meta Post about not Posting... Posted!
Lately, I've realized that I spend a lot of time thinking I need to get a blog post done and posted, but it seems like even when I have the time or ability to focus, it's hard to rally up the energy to push on ahead and find the words that need to happen to make that happen! If you've been following the PB Community Facebook Page for a relatively significant amount of time, you'll have noticed I've slowed in my pursuits there over the past year or so, as well. Let's see if I actually get this one done and posted!
Post Labels:
Bravery,
Challenges,
Confidence,
Coping,
Courage,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Health,
Hope,
Optimism,
Rare Disease,
Support,
Thoughts
Saturday, January 20, 2018
An Apologetic Courage and a Piece of the Madness
Another personal story post for you, related to my ongoing journey with the health-related mess. I'm aware that some people want only to be engaged with the PB Project's more neutral features, without personal details, and that is perfectly okay with me! Hence the warning. If you want to continue, you're very much my guest.
Post Labels:
Abilities,
Bravery,
Challenges,
Choice,
Coping,
Courage,
EDS,
Ehlers-Danlos Syndrome,
Empathy,
Fear,
Friendship,
Health,
Hope,
Love,
Pain,
Parents,
Rare Disease,
Strength,
Support
Sunday, November 12, 2017
Facets of Smiles and Tears
Don't cry because it's over.
Smile because it happened.
~ disputably attributed to Dr Seuss
Which is why it's perfect for this post.
Post Labels:
Autoimmunity,
Challenges,
Choice,
Clarity,
Coping,
Darkness,
EDS,
Ehlers-Danlos Syndrome,
Empathy,
Gratitude,
Grief,
Healing,
Love,
Memories,
Pain,
Parents
Sunday, October 8, 2017
Lessons of a Lifetime in a Year
As we find ourselves winding toward the end of another year, I have to take a moment to think about what that means, and for me in particular. So if you'd like to come along, I'm happy to take you along with me. Maybe something I end up saying will have something meaningful for you; if possible, perhaps for us both.
Post Labels:
Abilities,
Bipolar Disorder,
Challenges,
Choice,
Coping,
Darkness,
Depression,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Grief,
Growth,
Health,
Hope,
Light,
Mantra,
Memories,
Mindfulness,
Stress,
Thoughts
Monday, March 13, 2017
Endure to Enlighten the Shadows We Traverse...Someday
I know, I've been a little dry on the posts, lately. My apologies, but life happens, and sometimes we just don't have it in us to maintain the steady rhythm, you know? Since the PB Project has been all about trying to help us all know that we are not alone in what we face, even if what we each face is not the same, I'm just going to let you know that part of that has been about trying to find ways to give self-care during a rather rough patch, these past months. I've explained that on the PB Community Facebook Page, but not as much for you. So there you go.
Post Labels:
Abilities,
Challenges,
Choice,
Coping,
Courage,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Gastroparesis,
Gratitude,
Grief,
Healing,
Health,
Hope,
Pain,
Patience,
Rare Disease,
Strength,
Support,
Worry
Monday, February 27, 2017
A Gnarled Bit of Wood
I have the wonderful opportunity to be able to serve as a volunteer at a local hospital, a few hours, once a week. This week, volunteering was exhausting, but always nice to get out and do it. While there, I had a couple of really interesting conversations, with some odd sorts of realizations!
Post Labels:
Abilities,
Beauty,
Challenges,
Choice,
Communication,
Coping,
Courage,
Disabilities,
EDS,
Ehlers-Danlos Syndrome,
Growth,
Health,
Pain,
Strength,
Support
Monday, January 9, 2017
Failures, Do-Overs, If Onlys, and Choices
Life is weird.
Post Labels:
Abilities,
Challenges,
Change,
Choice,
Clarity,
EDS,
Ehlers-Danlos Syndrome,
Failure,
Growth,
Health,
Hope,
Memories,
Mindfulness,
Mistakes,
Rare Disease
Monday, January 2, 2017
In Review, and in Preview
Something a little different this week. I posted this elsewhere in my little world, but I felt like it was something worth sharing here, so I'm going to do it, maybe with slight differences.
Post Labels:
Challenges,
Choice,
Clarity,
Confidence,
Coping,
Courage,
EDS,
Ehlers-Danlos Syndrome,
Family,
Friendship,
Gastroparesis,
Health,
Hope,
Love,
Memories,
Optimism,
Strength,
Thoughts,
Whanau
Monday, December 5, 2016
A Little Dose of Reality
This week, I want to approach something of a bit of a sensitive nature. I truly hope that those for whom it might be a bit triggering will allow me to finish my point before giving up on me, because it's about how we face our own mortality when - well, faced with our own mortality. It really shouldn't be too bad, but I like to give people the heads up.
Post Labels:
Abilities,
Bipolar Disorder,
Challenges,
Choice,
Clarity,
Creativity,
Darkness,
Depression,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Grief,
Hope,
Light,
Mindfulness,
Pain,
Rare Disease,
Service,
Support,
Winter
Monday, October 31, 2016
I'm Grateful That's All You Have!
Okay... so I'd not exactly planned to have this blog reflect my personal journey, so much, but it appears that is where my creative powers have gone, and so I can only follow their lead. My mind is interesting, that way: it seems to want to express what it wants to express, and anything else won't get shared! So I guess you get to know me a little better!
Post Labels:
Abilities,
Celiac Disease,
Challenges,
Cliches,
Communication,
Coping,
EDS,
Ehlers-Danlos Syndrome,
Empathy,
Gastroparesis,
Gluten,
Gratitude,
Health,
Interstitial Cystitis,
Mindfulness,
Support
Monday, October 24, 2016
I Write... Because...
This week, I'm going to write about... my writing. I'd more or less been floating around a topic for this week's post, and came across something which resonated so purely with me, it dropped all the other thoughts I'd had, and had me riveted. This post is unlikely to be as riveting as her message was to me, but it might at least touch someone, in some way, hopefully positive, and that is all it is meant to be. My heart speaking to someone else's. So, here we go.
Post Labels:
Anxiety,
Bipolar Disorder,
Challenges,
Choice,
Coping,
Courage,
Darkness,
Depression,
Discouragement,
EDS,
Gratitude,
Healing,
Hope,
Joy,
Mindfulness,
Pain,
Rare Disease,
Strength,
Stress,
Support
Monday, October 10, 2016
The Story of My Truth, and Defying the Ending
I'm going to share another something I recently shared with some of my personal folks, with some modifications. This might or might not sound kinda lame to you. But it's my truth. So be it.
Post Labels:
Abilities,
Challenges,
Choice,
Clarity,
Confidence,
Creativity,
Depression,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Freedom,
Gastroparesis,
Health,
Hope,
Memories,
Parents,
Rare Disease,
Thoughts
Monday, August 29, 2016
Perfection in the Personal Paradox
Hello, again. I promise I'm still around, and working toward progress. You'd be surprised at how many drafts from over the years I have sitting there, started but not feeling "right". But that actually plays well with the idea that I've thought to share for this week. Let's see if it gets out for you to read! It's a little raw, just so you know. But that's how it's been, lately, and what falls out of my mind is usually filtered through whatever is on it at the time. Pretty sure that's the way it works for a lot of things, for a lot of people. Anyway, here we go.
Post Labels:
Abilities,
Beauty,
Bravery,
Challenges,
Choice,
Coping,
Cowardice,
Depression,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Friendship,
Grief,
Happiness,
Hope,
Humor,
Light,
Pessimism,
Strength,
Support
Monday, July 18, 2016
So Now We Know, and Onward We Go
Inasmuch as I have been sharing the continuing saga of my search to find answers for myself, I suppose it would be appropriate to share what has happened this past week, as some major, significant events transpired to illuminate a lot of what has been going on! So let's get on that, hmm?
Post Labels:
Challenges,
Choice,
Coping,
EDS,
Ehlers-Danlos Syndrome,
Fibromyalgia,
Gastroparesis,
Gratitude,
Growth,
Healing,
Health,
Hope,
Light,
Optimism,
Pain,
Rare Disease,
Recipe,
Stigma,
Strength,
Worry
Monday, July 4, 2016
Calm in "The Diagnosis Vortex of Doom"
Last week, I shared a link to an article by Michelle Auerbach which resonated with a lot of people who are struggling with illnesses which either cannot be, or simply haven't yet been diagnosed, and an adequate treatment program begun. The fact that so many agreed it was an issue of importance, both in public and in private, has had me thinking about my own situation, and so, here we go again! Something a little unusual, but hopefully of value to someone, as well as doing right by Ms Auerbach and her article.
Post Labels:
Autoimmunity,
Celiac Disease,
Challenges,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Fibromyalgia,
Gastroparesis,
Health,
Hope,
Hypermobility Syndrome,
Interstitial Cystitis,
Pain,
Patience,
Rare Disease,
Support
Wednesday, February 18, 2015
Ignorance Isn't the Bliss You'd Like It to Be
I'm not usually one to directly share links to other entities, here on this blog, partly because I am very aware that there are a LOT of "awareness" days, weeks, months, etc.; but this one is different. This one is important to me, in a very personal and unique way.
Post Labels:
Autoimmunity,
Celiac Disease,
Challenges,
Change,
Communication,
EDS,
Ehlers-Danlos Syndrome,
Gastroparesis,
Health,
Hope,
Hypermobility Syndrome,
Interstitial Cystitis,
Pain,
Rare Disease,
Service,
Stigma,
Support
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