I asked a question of a Zebra (rare conditions) group of which I'm a member: how do they manage to have hope for the future?
I've been around a while, and learned a few things along the way. I believe one should leave this world a bit more, for the moment shared with it; perhaps it's time I try.
Showing posts with label Hope. Show all posts
Showing posts with label Hope. Show all posts
Saturday, March 6, 2021
Hope for Hope and Where I could Find It
Post Labels:
Abilities,
Challenges,
Clarity,
Coping,
Darkness,
Disabilities,
Discouragement,
Empathy,
Grief,
Health,
Hope,
Mindfulness,
Strength,
Stress,
Support
Wednesday, January 6, 2021
A Meta Post about not Posting... Posted!
Lately, I've realized that I spend a lot of time thinking I need to get a blog post done and posted, but it seems like even when I have the time or ability to focus, it's hard to rally up the energy to push on ahead and find the words that need to happen to make that happen! If you've been following the PB Community Facebook Page for a relatively significant amount of time, you'll have noticed I've slowed in my pursuits there over the past year or so, as well. Let's see if I actually get this one done and posted!
Post Labels:
Bravery,
Challenges,
Confidence,
Coping,
Courage,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Health,
Hope,
Optimism,
Rare Disease,
Support,
Thoughts
Monday, June 25, 2018
From Memes, to Memories, to Meanings
Sometimes I struggle as one who serves in the "inspirational" genre, especially on social media. It can be hard to be a struggling empath with a quirky, sometimes sarcastic and/or dark sense of humor when trying to balance honesty, inspiration, light, and syrup: oh those memes, quotes, misquotes, plagiarism, and one of the worst: cliches!
Post Labels:
Beauty,
Challenges,
Change,
Cliches,
Coping,
Creativity,
Depression,
Discouragement,
Gratitude,
Grief,
Growth,
Health,
Hope,
Humor,
Joy,
Love,
Memories,
Stress,
Support,
Thoughts
Monday, June 18, 2018
Pseudo-Zen, and My Choice to Embrace What Is
I call it, "pseudo-Zen."
Post Labels:
Abilities,
Attachment,
Challenges,
Choice,
Clarity,
Coping,
Discouragement,
Grief,
Hope,
Light,
Mindfulness,
Patience,
Strength,
Stress,
Thoughts,
Worry
Monday, April 16, 2018
Pondering the Music, and the Silence
I've come to know a lot of amazing people on my crazy journey with the PB Project. Some far, more advanced in their suffering, and some just trying to get by. And of course, all kinds in-between.Saturday, January 20, 2018
An Apologetic Courage and a Piece of the Madness
Another personal story post for you, related to my ongoing journey with the health-related mess. I'm aware that some people want only to be engaged with the PB Project's more neutral features, without personal details, and that is perfectly okay with me! Hence the warning. If you want to continue, you're very much my guest.
Post Labels:
Abilities,
Bravery,
Challenges,
Choice,
Coping,
Courage,
EDS,
Ehlers-Danlos Syndrome,
Empathy,
Fear,
Friendship,
Health,
Hope,
Love,
Pain,
Parents,
Rare Disease,
Strength,
Support
Thursday, January 4, 2018
When the Light Goes Out
It's January. Time to think about something new. This is not a "new year resolution" but simply something I realized as I was going about, and thought I'd share with you.
Post Labels:
Challenges,
Change,
Choice,
Communication,
Coping,
Creativity,
Darkness,
Depression,
Discouragement,
Empathy,
Grief,
Healing,
Hope,
Light,
Love,
Pain,
Service,
Support,
Thoughts,
Winter
Sunday, October 8, 2017
Lessons of a Lifetime in a Year
As we find ourselves winding toward the end of another year, I have to take a moment to think about what that means, and for me in particular. So if you'd like to come along, I'm happy to take you along with me. Maybe something I end up saying will have something meaningful for you; if possible, perhaps for us both.
Post Labels:
Abilities,
Bipolar Disorder,
Challenges,
Choice,
Coping,
Darkness,
Depression,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Grief,
Growth,
Health,
Hope,
Light,
Mantra,
Memories,
Mindfulness,
Stress,
Thoughts
Sunday, July 30, 2017
From the Pages of My Mind
On the PB Community Facebook Page, we often discuss ways and means of finding the ability to get through and move forward after our more challenging situations we've had to face; since the most basic premise of the PB Project has been to allow people to feel they are not alone in their struggles, I have always felt it to only be fair that I share whatever I feel would help in that effort. This week, I thought I'd share a little of my inner thought processes; this time, part of it comes not from posts I've shared elsewhere, but actually from working through things in my journal. Perhaps it can help demonstrate some of what I've meant when discussing that topic.
Post Labels:
Abilities,
Challenges,
Choice,
Clarity,
Coping,
Creativity,
Darkness,
Depression,
Discouragement,
Empathy,
Grief,
Growth,
Healing,
Hope,
Mantra,
Mistakes,
Pain,
Strength,
Stress,
Thoughts
Sunday, June 25, 2017
Amazing, Awe-Inspiring, and Remarkable, Remember?
What a crazy life this is, and yet awe-inspiring and amazing, if I think about it.
Monday, May 15, 2017
A Bittersweet Break for a Day
Hello my friends. I'm just taking a moment to think out a few things, so I hope you don't mind if I take you with me? Well, I suppose if you do, you can just stop reading, and no harm done!
Post Labels:
Anxiety,
Beauty,
Challenges,
Clarity,
Communication,
Coping,
Courage,
Creativity,
Depression,
Empathy,
Family,
Grief,
Hope,
Light,
Love,
Memories,
Optimism,
Parents,
Patience,
Support
Sunday, April 9, 2017
Positive Spins and Nudgings of Change
A couple of weeks ago I pinned an archived post to the top of the PB Facebook Community Page, again, and the experience I had while searching for it had me thinking of something which I ended up sharing along with the actual, shared link. After typing out that whole thing, I realized it would just as well work for a blog post, but I was too tired to try to make that work right then, so I decided to just copy it, paste it into a new post on the blog, wiggle around with it, and ta da! New post! Then last week happened, and I pushed it off again, and this week I'm just gonna do it! With slight apologies to those who might remember much of it. Here's how it went:
Post Labels:
Abilities,
Challenges,
Change,
Choice,
Clarity,
Communication,
Coping,
Creativity,
Disabilities,
Discouragement,
Friendship,
Health,
Hope,
Humor,
Pain,
Patience,
Stress,
Support,
Whanau
Monday, April 3, 2017
A Letter to a Grieving Friend
I had another post ready for this week, but then my feeds became inundated with grieving friends and notifications of great amounts of loss in the world, and so things changed regarding my plans for this week, and you get this, instead.
Post Labels:
Challenges,
Choice,
Clarity,
Communication,
Coping,
Darkness,
Empathy,
Family,
Friendship,
Grief,
Healing,
Hope,
Love,
Pain,
Parents,
Patience,
Service,
Stress,
Support
Monday, March 13, 2017
Endure to Enlighten the Shadows We Traverse...Someday
I know, I've been a little dry on the posts, lately. My apologies, but life happens, and sometimes we just don't have it in us to maintain the steady rhythm, you know? Since the PB Project has been all about trying to help us all know that we are not alone in what we face, even if what we each face is not the same, I'm just going to let you know that part of that has been about trying to find ways to give self-care during a rather rough patch, these past months. I've explained that on the PB Community Facebook Page, but not as much for you. So there you go.
Post Labels:
Abilities,
Challenges,
Choice,
Coping,
Courage,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Gastroparesis,
Gratitude,
Grief,
Healing,
Health,
Hope,
Pain,
Patience,
Rare Disease,
Strength,
Support,
Worry
Monday, January 9, 2017
Failures, Do-Overs, If Onlys, and Choices
Life is weird.
Post Labels:
Abilities,
Challenges,
Change,
Choice,
Clarity,
EDS,
Ehlers-Danlos Syndrome,
Failure,
Growth,
Health,
Hope,
Memories,
Mindfulness,
Mistakes,
Rare Disease
Monday, January 2, 2017
In Review, and in Preview
Something a little different this week. I posted this elsewhere in my little world, but I felt like it was something worth sharing here, so I'm going to do it, maybe with slight differences.
Post Labels:
Challenges,
Choice,
Clarity,
Confidence,
Coping,
Courage,
EDS,
Ehlers-Danlos Syndrome,
Family,
Friendship,
Gastroparesis,
Health,
Hope,
Love,
Memories,
Optimism,
Strength,
Thoughts,
Whanau
Monday, December 5, 2016
A Little Dose of Reality
This week, I want to approach something of a bit of a sensitive nature. I truly hope that those for whom it might be a bit triggering will allow me to finish my point before giving up on me, because it's about how we face our own mortality when - well, faced with our own mortality. It really shouldn't be too bad, but I like to give people the heads up.
Post Labels:
Abilities,
Bipolar Disorder,
Challenges,
Choice,
Clarity,
Creativity,
Darkness,
Depression,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Grief,
Hope,
Light,
Mindfulness,
Pain,
Rare Disease,
Service,
Support,
Winter
Monday, October 24, 2016
I Write... Because...
This week, I'm going to write about... my writing. I'd more or less been floating around a topic for this week's post, and came across something which resonated so purely with me, it dropped all the other thoughts I'd had, and had me riveted. This post is unlikely to be as riveting as her message was to me, but it might at least touch someone, in some way, hopefully positive, and that is all it is meant to be. My heart speaking to someone else's. So, here we go.
Post Labels:
Anxiety,
Bipolar Disorder,
Challenges,
Choice,
Coping,
Courage,
Darkness,
Depression,
Discouragement,
EDS,
Gratitude,
Healing,
Hope,
Joy,
Mindfulness,
Pain,
Rare Disease,
Strength,
Stress,
Support
Monday, October 17, 2016
A Little Try for Gratitude Couldn't Hurt Too Much!
Hello, my friends! This week I'm going to try to prove myself as not being a hypocrite. Actually, I say that because I sometimes feel like one, but really, I think I'm just proving that I know it is often easier said than done!
Post Labels:
Anxiety,
Challenges,
Choice,
Coping,
Depression,
Empathy,
Friendship,
Gratitude,
Grief,
Happiness,
Hope,
Light,
Love,
Memories,
Mindfulness,
Optimism,
Parents,
Service,
Support
Monday, October 10, 2016
The Story of My Truth, and Defying the Ending
I'm going to share another something I recently shared with some of my personal folks, with some modifications. This might or might not sound kinda lame to you. But it's my truth. So be it.
Post Labels:
Abilities,
Challenges,
Choice,
Clarity,
Confidence,
Creativity,
Depression,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Freedom,
Gastroparesis,
Health,
Hope,
Memories,
Parents,
Rare Disease,
Thoughts
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