I asked a question of a Zebra (rare conditions) group of which I'm a member: how do they manage to have hope for the future?
I've been around a while, and learned a few things along the way. I believe one should leave this world a bit more, for the moment shared with it; perhaps it's time I try.
Showing posts with label Health. Show all posts
Showing posts with label Health. Show all posts
Saturday, March 6, 2021
Hope for Hope and Where I could Find It
Post Labels:
Abilities,
Challenges,
Clarity,
Coping,
Darkness,
Disabilities,
Discouragement,
Empathy,
Grief,
Health,
Hope,
Mindfulness,
Strength,
Stress,
Support
Wednesday, January 6, 2021
A Meta Post about not Posting... Posted!

Post Labels:
Bravery,
Challenges,
Confidence,
Coping,
Courage,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Health,
Hope,
Optimism,
Rare Disease,
Support,
Thoughts
Sunday, March 8, 2020
Monday, July 16, 2018
The Weight I Carry in the Balance

"I wonder how much of what weighs me down is not mine to carry."
~ Aditi
Monday, June 25, 2018
From Memes, to Memories, to Meanings

Post Labels:
Beauty,
Challenges,
Change,
Cliches,
Coping,
Creativity,
Depression,
Discouragement,
Gratitude,
Grief,
Growth,
Health,
Hope,
Humor,
Joy,
Love,
Memories,
Stress,
Support,
Thoughts
Saturday, February 3, 2018
The Broken and The Giving

Post Labels:
Abilities,
Challenges,
Charity,
Choice,
Clarity,
Coping,
Discouragement,
Empathy,
Family,
Friendship,
Grief,
Health,
Love,
Parents,
Service,
Support
Saturday, January 20, 2018
An Apologetic Courage and a Piece of the Madness

Post Labels:
Abilities,
Bravery,
Challenges,
Choice,
Coping,
Courage,
EDS,
Ehlers-Danlos Syndrome,
Empathy,
Fear,
Friendship,
Health,
Hope,
Love,
Pain,
Parents,
Rare Disease,
Strength,
Support
Sunday, October 8, 2017
Lessons of a Lifetime in a Year

Post Labels:
Abilities,
Bipolar Disorder,
Challenges,
Choice,
Coping,
Darkness,
Depression,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Grief,
Growth,
Health,
Hope,
Light,
Mantra,
Memories,
Mindfulness,
Stress,
Thoughts
Sunday, July 16, 2017
A Relatively Short Moment of Truth

I posted this earlier this week in a more personal spot on social media, and was encouraged to share it, here. Inasmuch as this is actually something that really does resonate with me - lately, in particular - I figure I might as well, since that's why we're here. So, here:
Post Labels:
Abilities,
Beauty,
Challenges,
Change,
Choice,
Clarity,
Disabilities,
Discouragement,
Failure,
Gratitude,
Grief,
Happiness,
Health,
Memories,
Pain,
Stress,
Thoughts
Sunday, July 9, 2017
Forcing the Force of Forced Gratitude

Forced gratitude.
Sometimes just taking energy we feel like we don't have
and forcing ourselves to look at things differently can save our sanity....
Post Labels:
Abilities,
Beauty,
Challenges,
Choice,
Clarity,
Coping,
Courage,
Creativity,
Darkness,
Depression,
Discouragement,
Fear,
Gratitude,
Grief,
Health,
Humor,
Light,
Mindfulness,
Optimism,
Sleep
Sunday, April 9, 2017
Positive Spins and Nudgings of Change

Post Labels:
Abilities,
Challenges,
Change,
Choice,
Clarity,
Communication,
Coping,
Creativity,
Disabilities,
Discouragement,
Friendship,
Health,
Hope,
Humor,
Pain,
Patience,
Stress,
Support,
Whanau
Monday, March 13, 2017
Endure to Enlighten the Shadows We Traverse...Someday

Post Labels:
Abilities,
Challenges,
Choice,
Coping,
Courage,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Gastroparesis,
Gratitude,
Grief,
Healing,
Health,
Hope,
Pain,
Patience,
Rare Disease,
Strength,
Support,
Worry
Monday, February 27, 2017
A Gnarled Bit of Wood

Post Labels:
Abilities,
Beauty,
Challenges,
Choice,
Communication,
Coping,
Courage,
Disabilities,
EDS,
Ehlers-Danlos Syndrome,
Growth,
Health,
Pain,
Strength,
Support
Monday, January 9, 2017
Failures, Do-Overs, If Onlys, and Choices

Life is weird.
Post Labels:
Abilities,
Challenges,
Change,
Choice,
Clarity,
EDS,
Ehlers-Danlos Syndrome,
Failure,
Growth,
Health,
Hope,
Memories,
Mindfulness,
Mistakes,
Rare Disease
Monday, January 2, 2017
In Review, and in Preview

Post Labels:
Challenges,
Choice,
Clarity,
Confidence,
Coping,
Courage,
EDS,
Ehlers-Danlos Syndrome,
Family,
Friendship,
Gastroparesis,
Health,
Hope,
Love,
Memories,
Optimism,
Strength,
Thoughts,
Whanau
Monday, October 31, 2016
I'm Grateful That's All You Have!

Okay... so I'd not exactly planned to have this blog reflect my personal journey, so much, but it appears that is where my creative powers have gone, and so I can only follow their lead. My mind is interesting, that way: it seems to want to express what it wants to express, and anything else won't get shared! So I guess you get to know me a little better!
Post Labels:
Abilities,
Celiac Disease,
Challenges,
Cliches,
Communication,
Coping,
EDS,
Ehlers-Danlos Syndrome,
Empathy,
Gastroparesis,
Gluten,
Gratitude,
Health,
Interstitial Cystitis,
Mindfulness,
Support
Monday, October 10, 2016
The Story of My Truth, and Defying the Ending

Post Labels:
Abilities,
Challenges,
Choice,
Clarity,
Confidence,
Creativity,
Depression,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Freedom,
Gastroparesis,
Health,
Hope,
Memories,
Parents,
Rare Disease,
Thoughts
Monday, July 18, 2016
So Now We Know, and Onward We Go

Post Labels:
Challenges,
Choice,
Coping,
EDS,
Ehlers-Danlos Syndrome,
Fibromyalgia,
Gastroparesis,
Gratitude,
Growth,
Healing,
Health,
Hope,
Light,
Optimism,
Pain,
Rare Disease,
Recipe,
Stigma,
Strength,
Worry
Monday, July 4, 2016
Calm in "The Diagnosis Vortex of Doom"

Post Labels:
Autoimmunity,
Celiac Disease,
Challenges,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Fibromyalgia,
Gastroparesis,
Health,
Hope,
Hypermobility Syndrome,
Interstitial Cystitis,
Pain,
Patience,
Rare Disease,
Support
Monday, May 9, 2016
Bound and Determined!

Post Labels:
Abilities,
Beauty,
Challenges,
Choice,
Clarity,
Confidence,
Coping,
Darkness,
Discouragement,
Grief,
Growth,
Healing,
Health,
Hope,
Light,
Mindfulness,
Optimism,
Pain,
Pessimism,
Strength
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