I asked a question of a Zebra (rare conditions) group of which I'm a member: how do they manage to have hope for the future?
I've been around a while, and learned a few things along the way. I believe one should leave this world a bit more, for the moment shared with it; perhaps it's time I try.
Showing posts with label Health. Show all posts
Showing posts with label Health. Show all posts
Saturday, March 6, 2021
Hope for Hope and Where I could Find It
Post Labels:
Abilities,
Challenges,
Clarity,
Coping,
Darkness,
Disabilities,
Discouragement,
Empathy,
Grief,
Health,
Hope,
Mindfulness,
Strength,
Stress,
Support
Wednesday, January 6, 2021
A Meta Post about not Posting... Posted!
Lately, I've realized that I spend a lot of time thinking I need to get a blog post done and posted, but it seems like even when I have the time or ability to focus, it's hard to rally up the energy to push on ahead and find the words that need to happen to make that happen! If you've been following the PB Community Facebook Page for a relatively significant amount of time, you'll have noticed I've slowed in my pursuits there over the past year or so, as well. Let's see if I actually get this one done and posted!
Post Labels:
Bravery,
Challenges,
Confidence,
Coping,
Courage,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Health,
Hope,
Optimism,
Rare Disease,
Support,
Thoughts
Sunday, March 8, 2020
Monday, July 16, 2018
The Weight I Carry in the Balance
"I wonder how much of what weighs me down is not mine to carry."
~ Aditi
Monday, June 25, 2018
From Memes, to Memories, to Meanings
Sometimes I struggle as one who serves in the "inspirational" genre, especially on social media. It can be hard to be a struggling empath with a quirky, sometimes sarcastic and/or dark sense of humor when trying to balance honesty, inspiration, light, and syrup: oh those memes, quotes, misquotes, plagiarism, and one of the worst: cliches!
Post Labels:
Beauty,
Challenges,
Change,
Cliches,
Coping,
Creativity,
Depression,
Discouragement,
Gratitude,
Grief,
Growth,
Health,
Hope,
Humor,
Joy,
Love,
Memories,
Stress,
Support,
Thoughts
Saturday, February 3, 2018
The Broken and The Giving
In the past I have shared things that have touched me, that others have done, and given a little peek into why. This week I'm taking a similar approach, and I'm grateful to have been given permission to do so.
Post Labels:
Abilities,
Challenges,
Charity,
Choice,
Clarity,
Coping,
Discouragement,
Empathy,
Family,
Friendship,
Grief,
Health,
Love,
Parents,
Service,
Support
Saturday, January 20, 2018
An Apologetic Courage and a Piece of the Madness
Another personal story post for you, related to my ongoing journey with the health-related mess. I'm aware that some people want only to be engaged with the PB Project's more neutral features, without personal details, and that is perfectly okay with me! Hence the warning. If you want to continue, you're very much my guest.
Post Labels:
Abilities,
Bravery,
Challenges,
Choice,
Coping,
Courage,
EDS,
Ehlers-Danlos Syndrome,
Empathy,
Fear,
Friendship,
Health,
Hope,
Love,
Pain,
Parents,
Rare Disease,
Strength,
Support
Sunday, October 8, 2017
Lessons of a Lifetime in a Year
As we find ourselves winding toward the end of another year, I have to take a moment to think about what that means, and for me in particular. So if you'd like to come along, I'm happy to take you along with me. Maybe something I end up saying will have something meaningful for you; if possible, perhaps for us both.
Post Labels:
Abilities,
Bipolar Disorder,
Challenges,
Choice,
Coping,
Darkness,
Depression,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Grief,
Growth,
Health,
Hope,
Light,
Mantra,
Memories,
Mindfulness,
Stress,
Thoughts
Sunday, July 16, 2017
A Relatively Short Moment of Truth
I posted this earlier this week in a more personal spot on social media, and was encouraged to share it, here. Inasmuch as this is actually something that really does resonate with me - lately, in particular - I figure I might as well, since that's why we're here. So, here:
Post Labels:
Abilities,
Beauty,
Challenges,
Change,
Choice,
Clarity,
Disabilities,
Discouragement,
Failure,
Gratitude,
Grief,
Happiness,
Health,
Memories,
Pain,
Stress,
Thoughts
Sunday, July 9, 2017
Forcing the Force of Forced Gratitude
Forced gratitude.
Sometimes just taking energy we feel like we don't have
and forcing ourselves to look at things differently can save our sanity....
Post Labels:
Abilities,
Beauty,
Challenges,
Choice,
Clarity,
Coping,
Courage,
Creativity,
Darkness,
Depression,
Discouragement,
Fear,
Gratitude,
Grief,
Health,
Humor,
Light,
Mindfulness,
Optimism,
Sleep
Sunday, April 9, 2017
Positive Spins and Nudgings of Change
A couple of weeks ago I pinned an archived post to the top of the PB Facebook Community Page, again, and the experience I had while searching for it had me thinking of something which I ended up sharing along with the actual, shared link. After typing out that whole thing, I realized it would just as well work for a blog post, but I was too tired to try to make that work right then, so I decided to just copy it, paste it into a new post on the blog, wiggle around with it, and ta da! New post! Then last week happened, and I pushed it off again, and this week I'm just gonna do it! With slight apologies to those who might remember much of it. Here's how it went:
Post Labels:
Abilities,
Challenges,
Change,
Choice,
Clarity,
Communication,
Coping,
Creativity,
Disabilities,
Discouragement,
Friendship,
Health,
Hope,
Humor,
Pain,
Patience,
Stress,
Support,
Whanau
Monday, March 13, 2017
Endure to Enlighten the Shadows We Traverse...Someday
I know, I've been a little dry on the posts, lately. My apologies, but life happens, and sometimes we just don't have it in us to maintain the steady rhythm, you know? Since the PB Project has been all about trying to help us all know that we are not alone in what we face, even if what we each face is not the same, I'm just going to let you know that part of that has been about trying to find ways to give self-care during a rather rough patch, these past months. I've explained that on the PB Community Facebook Page, but not as much for you. So there you go.
Post Labels:
Abilities,
Challenges,
Choice,
Coping,
Courage,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Gastroparesis,
Gratitude,
Grief,
Healing,
Health,
Hope,
Pain,
Patience,
Rare Disease,
Strength,
Support,
Worry
Monday, February 27, 2017
A Gnarled Bit of Wood
I have the wonderful opportunity to be able to serve as a volunteer at a local hospital, a few hours, once a week. This week, volunteering was exhausting, but always nice to get out and do it. While there, I had a couple of really interesting conversations, with some odd sorts of realizations!
Post Labels:
Abilities,
Beauty,
Challenges,
Choice,
Communication,
Coping,
Courage,
Disabilities,
EDS,
Ehlers-Danlos Syndrome,
Growth,
Health,
Pain,
Strength,
Support
Monday, January 9, 2017
Failures, Do-Overs, If Onlys, and Choices
Life is weird.
Post Labels:
Abilities,
Challenges,
Change,
Choice,
Clarity,
EDS,
Ehlers-Danlos Syndrome,
Failure,
Growth,
Health,
Hope,
Memories,
Mindfulness,
Mistakes,
Rare Disease
Monday, January 2, 2017
In Review, and in Preview
Something a little different this week. I posted this elsewhere in my little world, but I felt like it was something worth sharing here, so I'm going to do it, maybe with slight differences.
Post Labels:
Challenges,
Choice,
Clarity,
Confidence,
Coping,
Courage,
EDS,
Ehlers-Danlos Syndrome,
Family,
Friendship,
Gastroparesis,
Health,
Hope,
Love,
Memories,
Optimism,
Strength,
Thoughts,
Whanau
Monday, October 31, 2016
I'm Grateful That's All You Have!
Okay... so I'd not exactly planned to have this blog reflect my personal journey, so much, but it appears that is where my creative powers have gone, and so I can only follow their lead. My mind is interesting, that way: it seems to want to express what it wants to express, and anything else won't get shared! So I guess you get to know me a little better!
Post Labels:
Abilities,
Celiac Disease,
Challenges,
Cliches,
Communication,
Coping,
EDS,
Ehlers-Danlos Syndrome,
Empathy,
Gastroparesis,
Gluten,
Gratitude,
Health,
Interstitial Cystitis,
Mindfulness,
Support
Monday, October 10, 2016
The Story of My Truth, and Defying the Ending
I'm going to share another something I recently shared with some of my personal folks, with some modifications. This might or might not sound kinda lame to you. But it's my truth. So be it.
Post Labels:
Abilities,
Challenges,
Choice,
Clarity,
Confidence,
Creativity,
Depression,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Freedom,
Gastroparesis,
Health,
Hope,
Memories,
Parents,
Rare Disease,
Thoughts
Monday, July 18, 2016
So Now We Know, and Onward We Go
Inasmuch as I have been sharing the continuing saga of my search to find answers for myself, I suppose it would be appropriate to share what has happened this past week, as some major, significant events transpired to illuminate a lot of what has been going on! So let's get on that, hmm?
Post Labels:
Challenges,
Choice,
Coping,
EDS,
Ehlers-Danlos Syndrome,
Fibromyalgia,
Gastroparesis,
Gratitude,
Growth,
Healing,
Health,
Hope,
Light,
Optimism,
Pain,
Rare Disease,
Recipe,
Stigma,
Strength,
Worry
Monday, July 4, 2016
Calm in "The Diagnosis Vortex of Doom"
Last week, I shared a link to an article by Michelle Auerbach which resonated with a lot of people who are struggling with illnesses which either cannot be, or simply haven't yet been diagnosed, and an adequate treatment program begun. The fact that so many agreed it was an issue of importance, both in public and in private, has had me thinking about my own situation, and so, here we go again! Something a little unusual, but hopefully of value to someone, as well as doing right by Ms Auerbach and her article.
Post Labels:
Autoimmunity,
Celiac Disease,
Challenges,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Fibromyalgia,
Gastroparesis,
Health,
Hope,
Hypermobility Syndrome,
Interstitial Cystitis,
Pain,
Patience,
Rare Disease,
Support
Monday, May 9, 2016
Bound and Determined!
We're going to try for another blog post, this week, my friends. Maybe we'll actually get it out there and you'll be able to read it! Here we go....
Post Labels:
Abilities,
Beauty,
Challenges,
Choice,
Clarity,
Confidence,
Coping,
Darkness,
Discouragement,
Grief,
Growth,
Healing,
Health,
Hope,
Light,
Mindfulness,
Optimism,
Pain,
Pessimism,
Strength
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