Showing posts with label Rare Disease. Show all posts
Showing posts with label Rare Disease. Show all posts

Wednesday, January 6, 2021

A Meta Post about not Posting... Posted!

        Lately, I've realized that I spend a lot of time thinking I need to get a blog post done and posted, but it seems like even when I have the time or ability to focus, it's hard to rally up the energy to push on ahead and find the words that need to happen to make that happen! If you've been following the PB Community Facebook Page for a relatively significant amount of time, you'll have noticed I've slowed in my pursuits there over the past year or so, as well. Let's see if I actually get this one done and posted!

Saturday, January 20, 2018

An Apologetic Courage and a Piece of the Madness

        Another personal story post for you, related to my ongoing journey with the health-related mess.  I'm aware that some people want only to be engaged with the PB Project's more neutral features, without personal details, and that is perfectly okay with me!  Hence the warning.  If you want to continue, you're very much my guest.

Monday, March 13, 2017

Endure to Enlighten the Shadows We Traverse...Someday

       I know, I've been a little dry on the posts, lately.  My apologies, but life happens, and sometimes we just don't have it in us to maintain the steady rhythm, you know?  Since the PB Project has been all about trying to help us all know that we are not alone in what we face, even if what we each face is not the same, I'm just going to let you know that part of that has been about trying to find ways to give self-care during a rather rough patch, these past months.  I've explained that on the PB Community Facebook Page, but not as much for you.  So there you go.

Monday, December 5, 2016

A Little Dose of Reality

        This week, I want to approach something of a bit of a sensitive nature.  I truly hope that those for whom it might be a bit triggering will allow me to finish my point before giving up on me, because it's about how we face our own mortality when - well, faced with our own mortality.  It really shouldn't be too bad, but I like to give people the heads up.

Monday, October 24, 2016

I Write... Because...

        This week, I'm going to write about... my writing.  I'd more or less been floating around a topic for this week's post, and came across something which resonated so purely with me, it dropped all the other thoughts I'd had, and had me riveted.  This post is unlikely to be as riveting as her message was to me, but it might at least touch someone, in some way, hopefully positive, and that is all it is meant to be.  My heart speaking to someone else's.  So, here we go.

Monday, October 10, 2016

The Story of My Truth, and Defying the Ending

        I'm going to share another something I recently shared with some of my personal folks, with some modifications.  This might or might not sound kinda lame to you.  But it's my truth.  So be it.

Monday, July 18, 2016

So Now We Know, and Onward We Go

        Inasmuch as I have been sharing the continuing saga of my search to find answers for myself, I suppose it would be appropriate to share what has happened this past week, as some major, significant events transpired to illuminate a lot of what has been going on!  So let's get on that, hmm?

Monday, July 4, 2016

Calm in "The Diagnosis Vortex of Doom"

        Last week, I shared a link to an article by Michelle Auerbach which resonated with a lot of people who are struggling with illnesses which either cannot be, or simply haven't yet been diagnosed, and an adequate treatment program begun.  The fact that so many agreed it was an issue of importance, both in public and in private, has had me thinking about my own situation, and so, here we go again!  Something a little unusual, but hopefully of value to someone, as well as doing right by Ms Auerbach and her article.

Monday, February 29, 2016

The Non-Post Post

        This is a non-post post.

        Because sometimes it's just appropriate to have a non-post post, and this seems like one of those times.

Sunday, January 24, 2016

Working on Standing Up to Be Counted!

        Some perspective to be added to that expressed all across the 'net in behalf of those who need others to understand.  Not chewing anyone out, nor trying to give tickets to any kind of guilt trip; just trying to do my part to help spread understanding, empathy and compassion to this world.  As usual, I've no idea what will be falling out of my head and into this post, but whatever it will be, I hope someone can benefit from it.

Monday, January 4, 2016

As Good a Time as Any!

        Last week, I'm sure I more than adequately explained, I'm not a big fan of "New Years resolutions".  

        This week, while I still feel that way, it seems a bit fitting that Life saw fit to hand me what it has, so I can make use of such a perfectly-timed need for a post topic!

        So... Let's do this.

Sunday, July 26, 2015

The Genuine Troubles of Heartaches and Battle Scars

        The premise of the PB Project has been, from the very beginning, that we all have our own challenges, and yet we all have commonalities in our experience.  Love, joy, fear, heartache, pain; all the emotions, thoughts, vulnerabilities and quirks that make us human, may be somewhat different in details, but make us all similar in one way or another.  Even when we are strangers to one another, we have bits and pieces that can connect us and help us feel a part of something bigger.  Our hearts yearn for this, as humans are communal creatures for a reason.  It is in our DNA to crave the safety and security that can come from being connected to other people.

Monday, February 23, 2015

To Gain Within Surrender, and Persevere

        This week's topic is a bit awkward for me.  I really squirm and hesitate to talk about some things, because I have emotional quirks, like everyone else, and this one has been with me a lifetime; so while I'm well-acquainted with it, I'm in the process of overcoming my fears of things (hence beginning the PB Project to begin with).  Therefore, this topic in my list of potentials happens to be one I'm ready to stare down and hope not to stumble in the process!

        Just know: this is a lot of my head bumbling about, this week, so no promises of eloquence, clarity nor entertainment value.  My only goal in the Project is to help connect with those who need it in a way that is hopefully healthy and uplifting.  My apologies if I kinda fall flat, this time.

Wednesday, February 18, 2015

Ignorance Isn't the Bliss You'd Like It to Be

        I'm not usually one to directly share links to other entities, here on this blog, partly because I am very aware that there are a LOT of "awareness" days, weeks, months, etc.; but this one is different. This one is important to me, in a very personal and unique way.