I've been around a while, and learned a few things along the way. I believe one should leave this world a bit more, for the moment shared with it; perhaps it's time I try.
Showing posts with label Rare Disease. Show all posts
Showing posts with label Rare Disease. Show all posts
Wednesday, January 6, 2021
A Meta Post about not Posting... Posted!
PB Community Facebook Page for a relatively significant amount of time, you'll have noticed I've slowed in my pursuits there over the past year or so, as well. Let's see if I actually get this one done and posted!
Lately, I've realized that I spend a lot of time thinking I need to get a blog post done and posted, but it seems like even when I have the time or ability to focus, it's hard to rally up the energy to push on ahead and find the words that need to happen to make that happen! If you've been following the
Post Labels:
Bravery,
Challenges,
Confidence,
Coping,
Courage,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Health,
Hope,
Optimism,
Rare Disease,
Support,
Thoughts
Saturday, January 20, 2018
An Apologetic Courage and a Piece of the Madness

Post Labels:
Abilities,
Bravery,
Challenges,
Choice,
Coping,
Courage,
EDS,
Ehlers-Danlos Syndrome,
Empathy,
Fear,
Friendship,
Health,
Hope,
Love,
Pain,
Parents,
Rare Disease,
Strength,
Support
Monday, March 13, 2017
Endure to Enlighten the Shadows We Traverse...Someday

Post Labels:
Abilities,
Challenges,
Choice,
Coping,
Courage,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Gastroparesis,
Gratitude,
Grief,
Healing,
Health,
Hope,
Pain,
Patience,
Rare Disease,
Strength,
Support,
Worry
Monday, January 9, 2017
Failures, Do-Overs, If Onlys, and Choices

Life is weird.
Post Labels:
Abilities,
Challenges,
Change,
Choice,
Clarity,
EDS,
Ehlers-Danlos Syndrome,
Failure,
Growth,
Health,
Hope,
Memories,
Mindfulness,
Mistakes,
Rare Disease
Monday, December 5, 2016
A Little Dose of Reality

This week, I want to approach something of a bit of a sensitive nature. I truly hope that those for whom it might be a bit triggering will allow me to finish my point before giving up on me, because it's about how we face our own mortality when - well, faced with our own mortality. It really shouldn't be too bad, but I like to give people the heads up.
Post Labels:
Abilities,
Bipolar Disorder,
Challenges,
Choice,
Clarity,
Creativity,
Darkness,
Depression,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Grief,
Hope,
Light,
Mindfulness,
Pain,
Rare Disease,
Service,
Support,
Winter
Monday, October 24, 2016
I Write... Because...

Post Labels:
Anxiety,
Bipolar Disorder,
Challenges,
Choice,
Coping,
Courage,
Darkness,
Depression,
Discouragement,
EDS,
Gratitude,
Healing,
Hope,
Joy,
Mindfulness,
Pain,
Rare Disease,
Strength,
Stress,
Support
Monday, October 10, 2016
The Story of My Truth, and Defying the Ending

Post Labels:
Abilities,
Challenges,
Choice,
Clarity,
Confidence,
Creativity,
Depression,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Freedom,
Gastroparesis,
Health,
Hope,
Memories,
Parents,
Rare Disease,
Thoughts
Monday, July 18, 2016
So Now We Know, and Onward We Go

Post Labels:
Challenges,
Choice,
Coping,
EDS,
Ehlers-Danlos Syndrome,
Fibromyalgia,
Gastroparesis,
Gratitude,
Growth,
Healing,
Health,
Hope,
Light,
Optimism,
Pain,
Rare Disease,
Recipe,
Stigma,
Strength,
Worry
Monday, July 4, 2016
Calm in "The Diagnosis Vortex of Doom"

Post Labels:
Autoimmunity,
Celiac Disease,
Challenges,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Fibromyalgia,
Gastroparesis,
Health,
Hope,
Hypermobility Syndrome,
Interstitial Cystitis,
Pain,
Patience,
Rare Disease,
Support
Monday, February 29, 2016
The Non-Post Post

This is a non-post post.
Because sometimes it's just appropriate to have a non-post post, and this seems like one of those times.
Post Labels:
Abilities,
Autoimmunity,
Bipolar Disorder,
Challenges,
Choice,
Coping,
Creativity,
Darkness,
Depression,
Discouragement,
Empathy,
Failure,
Health,
Mindfulness,
Rare Disease,
Rest,
Strength,
Stress
Sunday, January 24, 2016
Working on Standing Up to Be Counted!

Some perspective to be added to that expressed all across the 'net in behalf of those who need others to understand. Not chewing anyone out, nor trying to give tickets to any kind of guilt trip; just trying to do my part to help spread understanding, empathy and compassion to this world. As usual, I've no idea what will be falling out of my head and into this post, but whatever it will be, I hope someone can benefit from it.
Post Labels:
Anxiety,
Bipolar Disorder,
Challenges,
Choice,
Communication,
Coping,
Courage,
Depression,
Disabilities,
Discouragement,
Empathy,
Gastroparesis,
Grief,
Hope,
Pain,
Rare Disease,
Stigma
Monday, January 4, 2016
As Good a Time as Any!

Last week, I'm sure I more than adequately explained, I'm not a big fan of "New Years resolutions".
This week, while I still feel that way, it seems a bit fitting that Life saw fit to hand me what it has, so I can make use of such a perfectly-timed need for a post topic!
So... Let's do this.
Post Labels:
Abilities,
Challenges,
Change,
Choice,
Clarity,
Confidence,
Cowardice,
Fear,
Health,
Optimism,
Rare Disease,
Strength,
Stress,
Support,
Thoughts,
Worry
Sunday, July 26, 2015
The Genuine Troubles of Heartaches and Battle Scars

Post Labels:
Abilities,
Anxiety,
Autoimmunity,
Bipolar Disorder,
Challenges,
Coping,
Depression,
Discouragement,
Fear,
Grief,
Healing,
Health,
Hope,
Insomnia,
Love,
Pain,
Rare Disease,
Support,
Worry
Monday, February 23, 2015
To Gain Within Surrender, and Persevere

Just know: this is a lot of my head bumbling about, this week, so no promises of eloquence, clarity nor entertainment value. My only goal in the Project is to help connect with those who need it in a way that is hopefully healthy and uplifting. My apologies if I kinda fall flat, this time.
Post Labels:
Challenges,
Choice,
Coping,
Darkness,
Discouragement,
Friendship,
Gratitude,
Grief,
Health,
Hope,
Light,
Love,
Optimism,
Pain,
Patience,
Pessimism,
Rare Disease,
Service,
Strength,
Stress
Wednesday, February 18, 2015
Ignorance Isn't the Bliss You'd Like It to Be

Post Labels:
Autoimmunity,
Celiac Disease,
Challenges,
Change,
Communication,
EDS,
Ehlers-Danlos Syndrome,
Gastroparesis,
Health,
Hope,
Hypermobility Syndrome,
Interstitial Cystitis,
Pain,
Rare Disease,
Service,
Stigma,
Support
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