I know, I've been a little dry on the posts, lately. My apologies, but life happens, and sometimes we just don't have it in us to maintain the steady rhythm, you know? Since the PB Project has been all about trying to help us all know that we are not alone in what we face, even if what we each face is not the same, I'm just going to let you know that part of that has been about trying to find ways to give self-care during a rather rough patch, these past months. I've explained that on the PB Community Facebook Page, but not as much for you. So there you go.
I've been around a while, and learned a few things along the way. I believe one should leave this world a bit more, for the moment shared with it; perhaps it's time I try.
Showing posts with label Gastroparesis. Show all posts
Showing posts with label Gastroparesis. Show all posts
Monday, March 13, 2017
Endure to Enlighten the Shadows We Traverse...Someday
Post Labels:
Abilities,
Challenges,
Choice,
Coping,
Courage,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Gastroparesis,
Gratitude,
Grief,
Healing,
Health,
Hope,
Pain,
Patience,
Rare Disease,
Strength,
Support,
Worry
Monday, January 2, 2017
In Review, and in Preview
Something a little different this week. I posted this elsewhere in my little world, but I felt like it was something worth sharing here, so I'm going to do it, maybe with slight differences.
Post Labels:
Challenges,
Choice,
Clarity,
Confidence,
Coping,
Courage,
EDS,
Ehlers-Danlos Syndrome,
Family,
Friendship,
Gastroparesis,
Health,
Hope,
Love,
Memories,
Optimism,
Strength,
Thoughts,
Whanau
Monday, October 31, 2016
I'm Grateful That's All You Have!
Okay... so I'd not exactly planned to have this blog reflect my personal journey, so much, but it appears that is where my creative powers have gone, and so I can only follow their lead. My mind is interesting, that way: it seems to want to express what it wants to express, and anything else won't get shared! So I guess you get to know me a little better!
Post Labels:
Abilities,
Celiac Disease,
Challenges,
Cliches,
Communication,
Coping,
EDS,
Ehlers-Danlos Syndrome,
Empathy,
Gastroparesis,
Gluten,
Gratitude,
Health,
Interstitial Cystitis,
Mindfulness,
Support
Monday, October 10, 2016
The Story of My Truth, and Defying the Ending
I'm going to share another something I recently shared with some of my personal folks, with some modifications. This might or might not sound kinda lame to you. But it's my truth. So be it.
Post Labels:
Abilities,
Challenges,
Choice,
Clarity,
Confidence,
Creativity,
Depression,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Freedom,
Gastroparesis,
Health,
Hope,
Memories,
Parents,
Rare Disease,
Thoughts
Monday, July 18, 2016
So Now We Know, and Onward We Go
Inasmuch as I have been sharing the continuing saga of my search to find answers for myself, I suppose it would be appropriate to share what has happened this past week, as some major, significant events transpired to illuminate a lot of what has been going on! So let's get on that, hmm?
Post Labels:
Challenges,
Choice,
Coping,
EDS,
Ehlers-Danlos Syndrome,
Fibromyalgia,
Gastroparesis,
Gratitude,
Growth,
Healing,
Health,
Hope,
Light,
Optimism,
Pain,
Rare Disease,
Recipe,
Stigma,
Strength,
Worry
Monday, July 4, 2016
Calm in "The Diagnosis Vortex of Doom"
Last week, I shared a link to an article by Michelle Auerbach which resonated with a lot of people who are struggling with illnesses which either cannot be, or simply haven't yet been diagnosed, and an adequate treatment program begun. The fact that so many agreed it was an issue of importance, both in public and in private, has had me thinking about my own situation, and so, here we go again! Something a little unusual, but hopefully of value to someone, as well as doing right by Ms Auerbach and her article.
Post Labels:
Autoimmunity,
Celiac Disease,
Challenges,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Fibromyalgia,
Gastroparesis,
Health,
Hope,
Hypermobility Syndrome,
Interstitial Cystitis,
Pain,
Patience,
Rare Disease,
Support
Sunday, January 24, 2016
Working on Standing Up to Be Counted!
Some perspective to be added to that expressed all across the 'net in behalf of those who need others to understand. Not chewing anyone out, nor trying to give tickets to any kind of guilt trip; just trying to do my part to help spread understanding, empathy and compassion to this world. As usual, I've no idea what will be falling out of my head and into this post, but whatever it will be, I hope someone can benefit from it.
Post Labels:
Anxiety,
Bipolar Disorder,
Challenges,
Choice,
Communication,
Coping,
Courage,
Depression,
Disabilities,
Discouragement,
Empathy,
Gastroparesis,
Grief,
Hope,
Pain,
Rare Disease,
Stigma
Wednesday, February 18, 2015
Ignorance Isn't the Bliss You'd Like It to Be
I'm not usually one to directly share links to other entities, here on this blog, partly because I am very aware that there are a LOT of "awareness" days, weeks, months, etc.; but this one is different. This one is important to me, in a very personal and unique way.
Post Labels:
Autoimmunity,
Celiac Disease,
Challenges,
Change,
Communication,
EDS,
Ehlers-Danlos Syndrome,
Gastroparesis,
Health,
Hope,
Hypermobility Syndrome,
Interstitial Cystitis,
Pain,
Rare Disease,
Service,
Stigma,
Support
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