Another personal story post for you, related to my ongoing journey with the health-related mess. I'm aware that some people want only to be engaged with the PB Project's more neutral features, without personal details, and that is perfectly okay with me! Hence the warning. If you want to continue, you're very much my guest.
I've been around a while, and learned a few things along the way. I believe one should leave this world a bit more, for the moment shared with it; perhaps it's time I try.
Showing posts with label Pain. Show all posts
Showing posts with label Pain. Show all posts
Saturday, January 20, 2018
An Apologetic Courage and a Piece of the Madness
Post Labels:
Abilities,
Bravery,
Challenges,
Choice,
Coping,
Courage,
EDS,
Ehlers-Danlos Syndrome,
Empathy,
Fear,
Friendship,
Health,
Hope,
Love,
Pain,
Parents,
Rare Disease,
Strength,
Support
Thursday, January 4, 2018
When the Light Goes Out
It's January. Time to think about something new. This is not a "new year resolution" but simply something I realized as I was going about, and thought I'd share with you.
Post Labels:
Challenges,
Change,
Choice,
Communication,
Coping,
Creativity,
Darkness,
Depression,
Discouragement,
Empathy,
Grief,
Healing,
Hope,
Light,
Love,
Pain,
Service,
Support,
Thoughts,
Winter
Sunday, November 12, 2017
Facets of Smiles and Tears
Don't cry because it's over.
Smile because it happened.
~ disputably attributed to Dr Seuss
Which is why it's perfect for this post.
Post Labels:
Autoimmunity,
Challenges,
Choice,
Clarity,
Coping,
Darkness,
EDS,
Ehlers-Danlos Syndrome,
Empathy,
Gratitude,
Grief,
Healing,
Love,
Memories,
Pain,
Parents
Sunday, July 30, 2017
From the Pages of My Mind
On the PB Community Facebook Page, we often discuss ways and means of finding the ability to get through and move forward after our more challenging situations we've had to face; since the most basic premise of the PB Project has been to allow people to feel they are not alone in their struggles, I have always felt it to only be fair that I share whatever I feel would help in that effort. This week, I thought I'd share a little of my inner thought processes; this time, part of it comes not from posts I've shared elsewhere, but actually from working through things in my journal. Perhaps it can help demonstrate some of what I've meant when discussing that topic.
Post Labels:
Abilities,
Challenges,
Choice,
Clarity,
Coping,
Creativity,
Darkness,
Depression,
Discouragement,
Empathy,
Grief,
Growth,
Healing,
Hope,
Mantra,
Mistakes,
Pain,
Strength,
Stress,
Thoughts
Sunday, July 16, 2017
A Relatively Short Moment of Truth
I posted this earlier this week in a more personal spot on social media, and was encouraged to share it, here. Inasmuch as this is actually something that really does resonate with me - lately, in particular - I figure I might as well, since that's why we're here. So, here:
Post Labels:
Abilities,
Beauty,
Challenges,
Change,
Choice,
Clarity,
Disabilities,
Discouragement,
Failure,
Gratitude,
Grief,
Happiness,
Health,
Memories,
Pain,
Stress,
Thoughts
Sunday, April 9, 2017
Positive Spins and Nudgings of Change
A couple of weeks ago I pinned an archived post to the top of the PB Facebook Community Page, again, and the experience I had while searching for it had me thinking of something which I ended up sharing along with the actual, shared link. After typing out that whole thing, I realized it would just as well work for a blog post, but I was too tired to try to make that work right then, so I decided to just copy it, paste it into a new post on the blog, wiggle around with it, and ta da! New post! Then last week happened, and I pushed it off again, and this week I'm just gonna do it! With slight apologies to those who might remember much of it. Here's how it went:
Post Labels:
Abilities,
Challenges,
Change,
Choice,
Clarity,
Communication,
Coping,
Creativity,
Disabilities,
Discouragement,
Friendship,
Health,
Hope,
Humor,
Pain,
Patience,
Stress,
Support,
Whanau
Monday, April 3, 2017
A Letter to a Grieving Friend
I had another post ready for this week, but then my feeds became inundated with grieving friends and notifications of great amounts of loss in the world, and so things changed regarding my plans for this week, and you get this, instead.
Post Labels:
Challenges,
Choice,
Clarity,
Communication,
Coping,
Darkness,
Empathy,
Family,
Friendship,
Grief,
Healing,
Hope,
Love,
Pain,
Parents,
Patience,
Service,
Stress,
Support
Monday, March 13, 2017
Endure to Enlighten the Shadows We Traverse...Someday
I know, I've been a little dry on the posts, lately. My apologies, but life happens, and sometimes we just don't have it in us to maintain the steady rhythm, you know? Since the PB Project has been all about trying to help us all know that we are not alone in what we face, even if what we each face is not the same, I'm just going to let you know that part of that has been about trying to find ways to give self-care during a rather rough patch, these past months. I've explained that on the PB Community Facebook Page, but not as much for you. So there you go.
Post Labels:
Abilities,
Challenges,
Choice,
Coping,
Courage,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Gastroparesis,
Gratitude,
Grief,
Healing,
Health,
Hope,
Pain,
Patience,
Rare Disease,
Strength,
Support,
Worry
Monday, February 27, 2017
A Gnarled Bit of Wood
I have the wonderful opportunity to be able to serve as a volunteer at a local hospital, a few hours, once a week. This week, volunteering was exhausting, but always nice to get out and do it. While there, I had a couple of really interesting conversations, with some odd sorts of realizations!
Post Labels:
Abilities,
Beauty,
Challenges,
Choice,
Communication,
Coping,
Courage,
Disabilities,
EDS,
Ehlers-Danlos Syndrome,
Growth,
Health,
Pain,
Strength,
Support
Monday, December 5, 2016
A Little Dose of Reality
This week, I want to approach something of a bit of a sensitive nature. I truly hope that those for whom it might be a bit triggering will allow me to finish my point before giving up on me, because it's about how we face our own mortality when - well, faced with our own mortality. It really shouldn't be too bad, but I like to give people the heads up.
Post Labels:
Abilities,
Bipolar Disorder,
Challenges,
Choice,
Clarity,
Creativity,
Darkness,
Depression,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Grief,
Hope,
Light,
Mindfulness,
Pain,
Rare Disease,
Service,
Support,
Winter
Monday, October 24, 2016
I Write... Because...
This week, I'm going to write about... my writing. I'd more or less been floating around a topic for this week's post, and came across something which resonated so purely with me, it dropped all the other thoughts I'd had, and had me riveted. This post is unlikely to be as riveting as her message was to me, but it might at least touch someone, in some way, hopefully positive, and that is all it is meant to be. My heart speaking to someone else's. So, here we go.
Post Labels:
Anxiety,
Bipolar Disorder,
Challenges,
Choice,
Coping,
Courage,
Darkness,
Depression,
Discouragement,
EDS,
Gratitude,
Healing,
Hope,
Joy,
Mindfulness,
Pain,
Rare Disease,
Strength,
Stress,
Support
Monday, October 3, 2016
A Reason for a Glass of Rain, in the Darkness
Gonna try to again this week, just because I really feel like this needs to happen, but so far it just hasn't been happening. Some believe there is a reason for everything, but I've my own opinions about that. Either way, reason or no, we're gonna try again.
Post Labels:
Abilities,
Challenges,
Choice,
Coping,
Creativity,
Darkness,
Depression,
Discouragement,
Healing,
Hope,
Love,
Optimism,
Pain,
Pessimism,
Strength,
Support
Monday, August 15, 2016
My Friend, I Just Want You to Know...
Dear Friend,
I know you're going through a tough time, right now, but I just want you to know...
Post Labels:
Challenges,
Choice,
Communication,
Coping,
Creativity,
Darkness,
Empathy,
Family,
Friendship,
Gratitude,
Grief,
Happiness,
Hope,
Love,
Pain,
Patience,
Service,
Support,
Whanau
Monday, August 1, 2016
It's Okay.
Okay, so maybe it all isn't really okay. But that's okay, too.
Maybe just take some slow, deep breaths while you read this post,
and let it help you come back to center.
You might just found it was just what you needed.
You wouldn't be the only one, I promise.
Post Labels:
Abilities,
Bravery,
Challenges,
Clarity,
Confidence,
Coping,
Courage,
Depression,
Discouragement,
Fear,
Grief,
Happiness,
Healing,
Hope,
Mindfulness,
Pain,
Stress
Monday, July 18, 2016
So Now We Know, and Onward We Go
Inasmuch as I have been sharing the continuing saga of my search to find answers for myself, I suppose it would be appropriate to share what has happened this past week, as some major, significant events transpired to illuminate a lot of what has been going on! So let's get on that, hmm?
Post Labels:
Challenges,
Choice,
Coping,
EDS,
Ehlers-Danlos Syndrome,
Fibromyalgia,
Gastroparesis,
Gratitude,
Growth,
Healing,
Health,
Hope,
Light,
Optimism,
Pain,
Rare Disease,
Recipe,
Stigma,
Strength,
Worry
Monday, July 4, 2016
Calm in "The Diagnosis Vortex of Doom"
Last week, I shared a link to an article by Michelle Auerbach which resonated with a lot of people who are struggling with illnesses which either cannot be, or simply haven't yet been diagnosed, and an adequate treatment program begun. The fact that so many agreed it was an issue of importance, both in public and in private, has had me thinking about my own situation, and so, here we go again! Something a little unusual, but hopefully of value to someone, as well as doing right by Ms Auerbach and her article.
Post Labels:
Autoimmunity,
Celiac Disease,
Challenges,
Discouragement,
EDS,
Ehlers-Danlos Syndrome,
Fibromyalgia,
Gastroparesis,
Health,
Hope,
Hypermobility Syndrome,
Interstitial Cystitis,
Pain,
Patience,
Rare Disease,
Support
Monday, May 16, 2016
A Decade and an Open Box
Here we go again. This week, another personal topic for me, which I hope not to drop on your foot. If I do, you'll have my sincerest apologies. As I've said before, I feel that it is important for others to know that they are not alone in their experiences, even if ours are not the same. We are all made better through being empathic, together. And hence, we have the PB Project.
Post Labels:
Bravery,
Challenges,
Change,
Clarity,
Coping,
Empathy,
Family,
Friendship,
Grief,
Growth,
Healing,
Hope,
Love,
Memories,
Mindfulness,
Pain,
Parents,
Strength,
Support
Monday, May 9, 2016
Bound and Determined!
We're going to try for another blog post, this week, my friends. Maybe we'll actually get it out there and you'll be able to read it! Here we go....
Post Labels:
Abilities,
Beauty,
Challenges,
Choice,
Clarity,
Confidence,
Coping,
Darkness,
Discouragement,
Grief,
Growth,
Healing,
Health,
Hope,
Light,
Mindfulness,
Optimism,
Pain,
Pessimism,
Strength
Monday, April 11, 2016
The Strength that is Weakness
Been a bit since I was able to post, though I've been sharing some posts from the archives on the PB Facebook Community Page. Been working on recovering from the consequences of a clash between a flu bug and a distracted immune system! But hopefully I'm back, and since I've had some interesting observations, lately, and though they do come up from time to time, I thought I'd share some insights from my own perspective.
Post Labels:
Challenges,
Cliches,
Communication,
Confidence,
Coping,
Darkness,
Empathy,
Friendship,
Grief,
Health,
Hope,
Light,
Love,
Memories,
Optimism,
Pain,
Service,
Strength,
Stress,
Support
Monday, March 14, 2016
The Story of The Traveler's Hope
I'd like to tell you a story.
I hope you'd like to have me do that, for you.
If not, my apologies, but I'm going to tell you, anyway.
Post Labels:
Abilities,
Challenges,
Choice,
Coping,
Darkness,
Depression,
Disabilities,
Discouragement,
Freedom,
Growth,
Happiness,
Healing,
Health,
Hope,
Optimism,
Pain,
Pessimism,
Strength,
Stress,
Support
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